Whirlwind

The tumour first made its existence known on Thursday. It is Sunday today and SO MUCH has happened. We managed to obtain appointments with two other top notch specialists who have experience with Retinoblastoma for their opinions on the case. In Singapore, removing the eye to preserve life is their firm recommendation. Dr Quah Boon Long, a top specialist who has handled many retinoblastoma cases was also point-blank in telling us that we should remove the eye in order to save her life and to not consider the other options. IV chemotherapy and targeted chemotherapy are possible options but the failure rate is high and it will subject Elise to prolonged stress and suffering. The best way to save her life is to enucleate her eye. If everything goes well, it is likely she won’t need chemotherapy. Survival rates are high as well.

My in-laws are hopeful that Korea has better technologies and advancement (they do see a lot more cases than NUH does simply due to the sheer number of people living there. Higher population, more cases). We booked tickets but Elise fell very sick so we missed our flight. However, it also seems that the treatment in Korea is not suitable for Elise as she is too young. Looks are very important in Korean society so their first goal is always to save the eye.

It has been very stressful on my husband more than it is for me. After seeing Dr Quah, it is confirmed that this is the best way. My husband is alone and his family and friends are worried sick as well. It is much tougher on him. Over here, I have a lot of support to fall back on. There has not been one person who was not understanding of our situation. It’s a whole lifetime of gratitude debt (人情债) that I owe family and friends. My friend actually secured a next-day appointment with Dr Quah for us when even NUH could not contact him. She also came all the way down to my place with a luggage full of winter clothes and emotional support. She did all these for me when we had never even met before. The October moms want to organise a playdate for Elise before her operation too and have offered to do crowdfunding if the need arises. I bought private hospitalisation shield insurance for Elise so treatment in Singapore will be paid for.

I requested for prayers, we have so, so many people keeping us in their prayer list, including people we don’t personally know! 包个了. Our main concern now is for her to recover so that she can do her operation without complications. Other than that, she is still the happy bubba that we know!

 

2016-11-12-12-16-23
Tearing tissue into tiny little bits and offering it to Mommy
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